l could not stop worrying, l could not sleep well at night because l keep on thinking on his condition? His pedy just said his condition is not just serious but still l could not stop worrying...

Learn meditation techniques. Also a good cry is pouring. It is scary and your bravery can go so far. good luck.

Hi,

It is tough to know that ur son has two conditions, that he will have for the rest of his life. But look, ur son is among the lucky ones who have the right diagnosis, among those babies born everyday with no definite diagnosis of their disease.

Talk to the doctor, he must have explained already these two conditions, g6pd babies, as u know, can live normally as long as they avoid food/medications that trigger the symptoms, & that some congenital heart disease patients have mild structural defects (asd,vsd, etc) & r asymptomatic. They can live long lives as long as they take care of their health.

It is normal to worry, its human nature, because l know u love him & want the best for him. You will do great!

Nevertheless, remember that u have a growing baby boy, & no matter what conditions he may have, u do have one of life is greatest blessings. :)

l really do not think there is a way to ease ur worries. My son has Congenital heart disease. He had to have open heart surgery when he was 11 days old. We spent 5 months in the hospital 4 of that in the ICU. He unfortunately went into cardiac arrest after his surgery & was placed onto life support. l was told to say goodbye to him twice. Everyday l worry that he wo not wake up. The doctors have assured me that they r not concerned about his heart right now. But, that only gives a small amount of reassurance to a mother of a sick child. All l can say is it will start to get a little easier. My son is 9 months old now. l have had him home for 4 months. At first l could not even sleep in my bedroom. l slept with him in his swing & me right next to the swing on the couch. l would get up every hour or so just to see if he was pink & breathing. Slowly l moved his crib into my room & started sleeping in my own bed. The worry has slowly gone down. l still worry when he is down for a nap that l am going to walk into the room & find him blue & not breathing. l am not sure if that will ever go away. l hope so. l think for me it is going to take a long time.